Patient Resources

The sites listed below offer additional information and resources for patients. Please note, this is not intended to be a comprehensive list.

The mission of the American Association for Cancer Research (AACR) is to prevent and cure cancer through research, education, communication, and collaboration. Through its programs and services, the AACR fosters research in cancer and related biomedical science; accelerates the dissemination of new research findings among scientists and others dedicated to the conquest of cancer; promotes science education and training; and advances the understanding of cancer etiology, prevention, diagnosis, and treatment throughout the world.

ABC2 breaks through the boundaries of academia, nonprofits, industries and other research fields to find the cure. To reach new treatments faster, we’re helping our partners connect, learning from our failures and sharing one another’s successes.

The mission of the American Brain Tumor Association (ABTA)  is to advance the understanding and treatment of brain tumors with the goals of improving, extending and, ultimately, saving the lives of those impacted by a brain tumor diagnosis. We do this through interactions and engagements with brain tumor patients and their families, collaborations with allied groups and organizations, and the funding of brain tumor research.

The American Society of Clinical Oncology (ASCO) promotes and provides for cancer research, an improved environment for oncology practice, access to quality cancer care, a global network of oncology expertise, and educated and informed patients with cancer. ASCO is supported by its affiliate organization, the Conquer Cancer Foundation, which funds groundbreaking research and programs that make a tangible difference in the lives of people with cancer.

Founded in 1944, CancerCare is the leading national organization providing free, professional support services and information to help people manage the emotional, practical and financial challenges of cancer.

Critical Mass: The Young Adult Cancer Alliance is the full-time federal advocacy arm of the entire adolescent and young adult cancer community. Our mission is to advance policies that will transform the United States cancer care and delivery system to better serve adolescent and young adult patients and survivors.

The DIPG Collaborative is a collection of foundations with the common interest of inspiring research into the cure of Diffuse Intrinsic Pontine Glioma (DIPG) with the belief that through a cure for DIPG, significant advances in other cancer research will be made. Originally an organic development of the DIPG Symposium held in Cincinnati, Ohio, USA in 2011, today the DIPG Collaborative is made up of more than 20 foundations cooperatively funding between $1,000,000 to $2,000,000 in DIPG research every two years. The DIPG Symposium, which occurs every two years, is the culmination of not only the DIPG Collaborative’s funding cycle, but also features unique perspectives on research from experts around the globe.

The Musella Foundation For Brain Tumor Research & Information, Inc, a 501(C)3 nonprofit public charity dedicated to helping brain tumor patients through emotional and financial support, education, advocacy and raising money for brain tumor research.

The National Comprehensive Cancer Network® (NCCN®), a not-for-profit alliance of 27 leading cancer centers devoted to patient care, research, and education, is dedicated to improving the quality, effectiveness, and efficiency of cancer care so that patients can live better lives. Through the leadership and expertise of clinical professionals at NCCN Member Institutions, NCCN develops resources that present valuable information to the numerous stakeholders in the health care delivery system.

NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.  NORD, along with its more than 260 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

Stupid Cancer, a 501(c)3 nonprofit organization, is the largest charity that makes cancer suck less for those touched by young adult cancer. Founded in 2007 by Matthew Zachary, the innovative, award-winning and evidence-based programs and services of this organization serve as a global bullhorn to propel the young adult cancer movement forward.